The Long and Winding Road

Mom continues to make steady progress although she did have an episode where her oxygen levels plummeted and she had to go back on BiPAP for a while. They are no longer talking about a feeding tube, for now, and she is enjoying some real food again. This afternoon she had pureed macaroni and cheese and a thickened orange drink that was fortified with protein powder and nutrients, which she said was very good. We can see her getting stronger now that she is eating food again. However, whenever the topic of her recovery comes up her forehead crinkles up and she gets an overwhelmed look on her face. She knows how long it is going to take and is very frustrated by how hard everything is for her. The most important of those things being her breathing. The consensus among my siblings and me, for the moment, is that we will fight for her recovery as long as she wants to. It just feels like we are walking down this road that runs along a cliff and that at any moment the life that we all know will just fall away from us into some abyss.

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